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Old 08-27-2007, 11:53 PM   #821
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John was not doing well today. On top of the headaches he started throwing up again. then on the was to the car to go to the Dr.s he hesitated twice then his legs gave out and he fell. Sandie is falling apart..she has been so strong for him but now she is just worn out.
Marge
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Old 08-28-2007, 12:00 AM   #822
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Just a little glitch in the road. Hang in there everyone. If you have to do baby steps, so be it. Understand that you all are loved and supported by, really, global friends.

Best wishes and huge hugs from Buck and me.
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Old 08-28-2007, 01:02 AM   #823
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Hi Marge, I'm so sorry that John is having problems since the transplant. It's a very scary time waiting for the new immune system to kick in. The idea that doctors can totally destroy a person's unhealthy immune system, leaving them totally vulnerable to every germ around, and then give them the cells to build a healthy new one is a miracle! But sometimes the body has been through so much that it takes a while to rebuild itself. I know ya'll are scared and we are all scared for you but try not to lose hope. John hasn't come this far for nothing. We are keeping you and yours in our hearts and and thoughts and prayers.
Peace & Love,
Terry
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Old 08-29-2007, 09:59 PM   #824
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Marge sweetie - Bear sends his prayers as do I. It's certainly a slow-going process.
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Old 08-29-2007, 10:09 PM   #825
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sometimes we dont understand the why and the what, just trust in God go to his word you will find a scripture on healing, because he said by his stripes we were healed, stand on that and speak it every day, every time you think about it and leave it in the hands of God..... Hope this will help
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Old 08-29-2007, 11:58 PM   #826
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As the mother of a son who is close to John's age my heart aches for what you and his heroic wife and family are going through. I have kept up with your thread for a long time and have sent your family many silent prayers that all will work out. John has shown such courage so far and he is a fighter. So are the doctors. So you try and hang in there Marge--that's why God made mothers so strong.....
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Old 08-30-2007, 01:51 AM   #827
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Marge, I was so sorry to read about what John and Sandie are going through. Sometimes healing requires taking one step forward and two steps back. Keep the faith, Marge. Don't give up. God be with you and your dear family! My prayers are withh you.
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Old 08-30-2007, 01:41 PM   #828
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I received this from Sandie yesterday.
Hi Everyone,
It's Day 5 for John and all is well so far. He has had to deal with a couple issues, sore throat, nausea etc. but not too bad. John's levels have been hanging at the level of not desperately needing a transfusion (below 28), but needing one (his are 28.5). They have decided to go ahead and give him two units of today. We're both glad because every time he has received , he has felt better for a few days. It does make for a long day today, but it will be well worth it.

We're looking forward to having Chris, Tim and Kevin with us this weekend. During their visit we will be developing a caregiver rotation schedule. Once that is done, I think we will all feel a bit of relief. The planning is sometimes the hardest part.

I hope you are all doing well.
Love,
Sandie
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Old 08-30-2007, 01:46 PM   #829
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Sounds good, Marge. And it's nice they are formulating a care plan. That will allow everyone to share in what has to be done. Little baby steps forward. That's what's happening. Hugs and prayers all around from Buck and me.
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Old 08-30-2007, 02:16 PM   #830
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Love you lots, Marge... sending prayers westward.
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