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Old 02-20-2010, 06:46 PM   #21
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That is great news about the blood tests. Just keep on one day at a time.. that really is all any of us can do.
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Old 02-20-2010, 07:03 PM   #22
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Thanks, Dave. Yes, I agree. I really have a peace about all of this, even if some moments are tougher than others. Just thought I would check in and let everyone know how it is going.
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Old 02-21-2010, 09:18 AM   #23
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inspiring post Laurie!!

thanks for the update and I hope things improve for you and your family..
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Old 02-22-2010, 02:09 PM   #24
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Laurie,

I know everything will turn out good...
good news there are no signs for Lupus and even in worst case if it turns out to be MS, that is something you can live with - I have a collegue, who knows about her MS for about 10years now and with meds everything is okay...

and now I will go and watch Olympics and see if I can see you ;o)
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Old 03-03-2010, 03:15 PM   #25
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Hi Everyone,
Just thought I should check in as I have only done a few posts in the last while.

Still no word on the specialist and MRI appointments, thought I see my GP on Monday and if I haven't heard by then she is going to either get a push on it or try another doctor.

My fatigue is quite a bit better and I had my last B12 shot last week. I still tire out easily but at least am able to do things like cook and back a bit which is therapeutic for me.

However, my hands and legs are getting worse. They are twitching more often and more serverely and I am actually dropping things (broke a plate at lunch today) and having trouble picking small things up. My face, eye and brain have been better, but today they are feeling quite fuzzy and my sleep is broken as I wake up several times with pain. I think the worst of it though is just the not knowing. I can accept the symptoms, as long as I know what it is and what I can do to make it easier to live with.

But I am trying to keep my spirits up and not let it stop me too much. DH and I went to pick out the tiles we want for the kitchen backsplash and I can't wait for them to come in. We also ordered a new range hood and part for our stove so I will be able to use my big front burner again without burning everything!

As for my cake decorating, 3 members of our youth group have offered their services for free for my summer cakes just for the experience of learning the art. I am so excited about this. The order in April I thought I would have to cancel (it is through one of Vancouver's top event planners who liked my designs) is on again and the girl's roses are turning out beautiful!

The Olympics were amazing and while I was unable to attend any of the events - cultural or athletic - It was wonderful to see our beautiful Province and City shared with the world. Dad and I spent hours watching it on TV.

Typing is still an effort (this message has taken me about 20 minutes to write) and staring at the screen is hard on my eye and head, so I don't reply to threads often, but I do check in here often to see how you all are doing.
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Old 03-03-2010, 04:01 PM   #26
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Laurie,
what can I say? You know how I feel, I just wish there were something I could do. I miss you here and I know it's a struggle to try to type and answer all the posts to you. I just pray the doctor gets your tests in motion so that you have an answer.I feel things will be ok for you and I pray for this every day. Take care my friend, you are dearly loved.
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Old 03-03-2010, 09:10 PM   #27
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Thanks, CJ. I am doing okay. A little frustrated that my hands don't work, but I know I will be alright. Just know that you and others here care and are thinking of me helps tons.
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Old 03-03-2010, 09:27 PM   #28
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light a fire under those doctors, if they had the pains, they would get right on it. from me, to you. you deserve better treatment.
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Old 03-24-2010, 12:51 PM   #29
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I haven't posted here for awhile, mostly because I just wasn't up to it. A lot has gone on in the last three weeks and I won't bore you with all the details except some of the highlights that lead to today.

The symptoms were getting worse and I saw my doctor the Monday after my last post. It came out that because of my symptoms, I was unable to manage my chronic pain (Fibromyalgia, 17 yr old back fracture, my knee and osteoarthritis) as I normally do. So, she tried a new non narcotic pain med. Within hours of taking it I started to feel better.

Within a few days my feet started to "swell" more than normal. At times they were over 4 times their normal size and I was starting to feel horrible all over.

In the next two weeks I lowered the dose and then stopped the pain killer to no avail.

Yesterday I was rushed to the doctor who was horrified at what she saw (and my feet were actually not bad then) She said it was retained fluid and sent me for a barrage of tests to rule out congestive heart failure and other goodies.

I just got the call and everything is normal. My doctor believes that it was a side affect of the pain med and thanks to another pill I lost 8 pounds of fluid last night and am still going. There are still a couple of tests to go to make sure there is no heart damage from it, but I am feeling much better (and lost 8 pounds overnight .

But we still have to wait on the Neurolgist and MRI for the original symptoms but I am just so happy that this latest ordeal is over with.

Thanks for all of your kind wishes and support. I love you guys!
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Old 03-24-2010, 01:15 PM   #30
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Oh my!!! What an experience Miss Laurie!! I know it must have been scary! Soooo glad to hear it's over with now and you are better....It sounds as if I need to send a war party --- many braves, with many arrows to to pay the Neurologist and MRI folks a visit!!!! Maybe offer them some "encouragement" to get with the program?? Honestly...enough is enough!!!! I was thinking of you just the other day....It was Chied Fricken day!!!

Thanks for the update...We love hearing from you when you feel up to it....Continue to take care....The war party will leave at first light tomorrow
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