Hi Everyone,
First of all, I want to say I have been moved to tears by all of your replies. I have copied and pasted them and will print them so I can look at them when I need some inspiration which is often.
I was sharing with Katie that through my group I have had to make a very strict schedule of tasks, rest, "rewards", etc. and how they affect my pain and fatigue. Sitting at the computer is a bad one so I am limiting myself for the short term to an hour a week which is 10 minutes Monday to Saturday and none Sunday. This includes email, Facebook (yes, you can get me there) and anything non internet. It is harsh, but I will work up from that. It is just to help establish patterns that will work well in the long run.
I really do miss it here but I know that what I am doing is what is best. I am learning so much about myself and what works and doesn't. The medication change is not going the best but I am toughing it out best I can. I would really appreciate positive thoughts, prayers, whatever you have, on that one.
I probably won't check in here again for a long while - it will defeat the purpose of "giving it up" but wanted to thank you for your kind words and let you know that I am okay.
