Andy M.
Certified Pretend Chef
Any one here who has been around for a while knows I've always been a fairly private person. I don't easily share details of my private life. I also don't deal well with difficulties of people I care about here so I mostly avoid threads about health problems. That's a testament on me rather than any on this forum. However, I feel I want to explain what's been going on with me.
Last winter, my SO, Suzanne, developed a seizure disorder. The seizures became frequent and regular with several per day being the norm at its peak. The seizures are confined to her hands and arms but are still painful and debilitating. Treatment with a neurologist has lessened seizures in intensity and frequency to the point where a seizure occurs once in 2-3 weeks.
This has come at a cost. The meds have side effects that have had a significant impact on Suzanne's general well being, with speech difficulties and confusion. It's extremely frustrating for her. She has had to give up driving and we sold her car this past spring. She has always been proudly independent it was a difficult step for her to accept.
We sought a second opinion at a highly regarded regional medical center. The neurologist there recommended a weeklong hospital stay where she would be electronically and visually monitored while she was gradually taken off her meds. This would give the neurologist detailed info on what's going on in her brain. Precise measurements of brain activity during seizures will hopefully give them what they need to improve her situation.
Today I took her to the hospital to start this treatment. She's hopeful but I don't know what to think. I know I'd be thrilled if there was a solution that didn't involve so many meds that have altered her so much. I want my sweetheart back again.
Thanks for listening.
Last winter, my SO, Suzanne, developed a seizure disorder. The seizures became frequent and regular with several per day being the norm at its peak. The seizures are confined to her hands and arms but are still painful and debilitating. Treatment with a neurologist has lessened seizures in intensity and frequency to the point where a seizure occurs once in 2-3 weeks.
This has come at a cost. The meds have side effects that have had a significant impact on Suzanne's general well being, with speech difficulties and confusion. It's extremely frustrating for her. She has had to give up driving and we sold her car this past spring. She has always been proudly independent it was a difficult step for her to accept.
We sought a second opinion at a highly regarded regional medical center. The neurologist there recommended a weeklong hospital stay where she would be electronically and visually monitored while she was gradually taken off her meds. This would give the neurologist detailed info on what's going on in her brain. Precise measurements of brain activity during seizures will hopefully give them what they need to improve her situation.
Today I took her to the hospital to start this treatment. She's hopeful but I don't know what to think. I know I'd be thrilled if there was a solution that didn't involve so many meds that have altered her so much. I want my sweetheart back again.
Thanks for listening.